Kat (Baby aged 3 months, UK)

Kat

Introduction

I am a mother of three and previously worked as a pediatric nurse before facing accusations of shaken baby syndrome. My family had no history with social services or police involvement, and my children were happy and thriving. I maintained an unblemished professional record, and we were just a normal, happy family.

Pregnancy and Birth

Towards the end of my pregnancy, I started feeling unwell with more frequent headaches. I developed preeclampsia. My waters broke at 40 weeks and were meconium stained. An oxytocin drip caused uterine hyperstimulation, extreme pain, and fetal distress; there was no intervention. Fortunately, my child was born healthy with good Apgar scores. He weighed 4.08kg, measured 59cm in length, and had a head circumference of 37cm—a big baby! We were allowed to go home the same day. Everything seemed fine at that time except for him appearing quite sleepy, which I attributed to the difficult delivery. Our family was overjoyed with our new addition.

The Day Everything Changed

Over the next few weeks, I noticed some differences in my child compared to my other children. He didn’t sleep much during the day and always seemed to be moving his limbs. Friends and family reassured me that ’every baby is different,’ so I assumed I was just anxious. I was readmitted to the hospital three times due to complications with my blood pressure and started medication, which did not ease my anxiety, especially around breastfeeding and concerns about medication levels in my milk. He also seemed to struggle opening his bowels and had green stools; the GP suggested changing my diet. We thought he might have reflux as he became fussy during feeding.

In the weeks leading up to his collapse, we noticed him bringing up small amounts of milk, his movements becoming more pronounced, and I felt his head looked disproportionately large compared to his body. However, no one else shared these concerns, so I dismissed them, thinking I was overly anxious. When I visited the GP worried about postnatal anxiety, the only unusual thing on the day of the collapse was a brief ‘staring/vacant’ episode in the afternoon; when I called out to him, he smiled and seemed just sleepy.

In the evening, after going shopping, my husband called me back home urgently. When I arrived, he was making unusual breathing noises, almost like grunting. I took him from my husband and told him to call an ambulance. During that call, he began having a seizure. It lasted only minutes but felt like forever; I will never recover from that moment and still struggle to speak about it physically.

The paramedic noted episodes of bradycardia and mottled skin before rushing us to the hospital. Upon arrival, he was alert but his oxygen levels dipped, requiring supplemental oxygen which quickly recovered him. Doctors initially suspected sepsis and started antibiotics. Blood tests were mostly unremarkable except for a slight drop in hemoglobin and a rise in lactate.

Later, I felt that his fontanelle didn’t feel normal (it had always dipped slightly since birth) and asked the nurse to alert the doctor. Though he wasn’t concerned, I insisted it didn’t feel right for my son. He agreed to order a CT scan which showed a right-sided subdural hematoma described as mixed density. We were then transferred to a specialist children’s hospital for neurosurgical assessment.

When the Diagnosis Was Made

On arrival at the children’s hospital, I was already aware that a referral had been made to social services, but I wasn’t really aware that we were being suspected of causing harm. I was told the transfer was to conduct further tests to determine if he needed surgery and to find out what caused the bleeding. He was reviewed and found to be alert, smiling, and interacting normally. The team had reviewed the CT scan and decided that no intervention was necessary, opting for conservative management instead. He only required a nasogastric tube because he had vomited after some feeds.

Later in the day, a social worker arrived and informed us that he would need a ‘child protection medical’. It was at this point I started to think they were suspecting we had hurt our baby. At the medical, we were asked to consent to a skeletal survey (full body X-rays) to check for fractures, which of course we agreed to. We answered all their questions and cooperated fully. I was in shock; I was scared even to touch my baby, terrified his brain would bleed again or he would have another seizure.

We were then informed that we were not allowed to be unsupervised with him, so I had to call my mum to come to the hospital, which she did. He later had an eye exam, which I thought they were checking for tumours or masses; now I know they were looking for retinal haemorrhages - he had them, bilateral and extensive - which they used to further solidify their case.

Unbeknownst to me, social services visited my older children in school without my consent and pulled them out of class to ask intrusive questions about if they felt safe at home. My children are traumatized by this and still say how much it scared them. I had been begging the staff to complete an MRI to find what caused the bleed, but they kept delaying it. I couldn’t understand why there was no urgency, but finally, two days later, they completed it.

I had to watch my baby go under general anaesthetic for the procedure and wait anxiously for him to wake up. As soon as I was told he was awake and in recovery, I felt a sense of relief. He came back to the ward, and I waited anxiously for the doctors to give us the results. I was just about to express some breast milk when a safeguarding doctor and nurse came to ask me and his dad to go with them as social care and police had questions for us.

I didn’t think anything of it at all and agreed. We were taken into a room where I continued to express milk, and the safeguarding nurse made conversation with us; she was kind and made us feel safe and comfortable. The second I finished expressing milk, five uniformed police officers entered the room - I even smiled and said hello as I really had no idea what was about to happen. They arrested us. No warning, no compassion, no offer to just answer questions. Arrested and thrown into a cage in the back of a van and taken into custody. This will haunt me for the rest of my life.

My baby was in hospital needing his mum, and they took me, for no other reason than one doctor made the assumption ‘he must have been shaken’. I haven’t stopped researching since the second I was released from custody, and I won’t stop until I find the truth. The treating hospital did conduct a vascular anomalies MDT (though have not disclosed those records to myself or the courts….yet! ), and a renowned neurosurgeon has said that my son has BESS and that the bleed was a rebleed of an old subdural. But my son’s case is very complex; there are genetic factors at play too.

My son had no fractures, no bruises, not a single mark. He had no brain swelling, no hypoxia injury, no diffuse axonal injury - nothing to suggest this was traumatic in origin. I will NEVER stop fighting for justice for him. NEVER.

I was separated (though I was allowed supervised contact) from my children for nearly two years. Now they are home with me. There are no court orders for my older two children, but my baby is in my care subject to a full care order. Luckily, my older children remained with their father and my baby was placed with my mum; I have no idea how I would have coped if this wasn’t the case.

I was charged with child neglect after the police received the judgment from the family court findings - which were unsafe, to say the least - and I am currently planning an appeal. The criminal proceedings remain ongoing, but I am using them to fight for the truth of what happened to my baby.

This experience has broken me. I am not the same person I was before. It feels like two separate lives—the one before, and this new one now. My children have been traumatized. During the proceedings, my older children experienced skin reactions, were tearful, and became avoidant of new people and places. They refused to speak with social workers because they were so angry that their lives had been taken from them. Their bond with their baby brother was damaged but is now slowly beginning to heal. Even our relationship has become strained at times as we are learning a new way of life.

My relationship with my baby’s father broke down despite knowing deep down that he never hurt my child. The court process conditioned me to be suspicious, and my trust in him eroded. The stress of the proceedings destroyed us, and now our family is divided. My health has suffered; I developed shingles shortly after the family court’s finding of fact, and not long afterward, I was diagnosed with fibromyalgia, leaving me in constant pain.

Financially, I am ruined as I have lost my career as a pediatric nurse. My entire life has changed, but more importantly, my children’s world has shifted entirely. The feelings that remain today are anger and hurt. I cannot tolerate the injustice of being presumed a liar because I cannot explain what happened to my baby. This injustice is crippling me, and I won’t stop until I have the truth and this system is changed. I can’t allow this to happen to others, and I can’t let it be my son’s story.

For consistency across testimonies, this text may have been slightly edited or translated by artificial intelligence. If you notice any error or inconsistency, please don’t hesitate to contact us.

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